Dear Friends,
If you have found this web
site—welcome. Perhaps you are a friend who wants to know more, or perhaps you
are a parent who just found out your child has
lissencephaly. It is
overwhelming to comprehend a diagnosis of this kind. But you will move through it and learn to appreciate your beautiful child---now you just know more about them as people. We can tell that there are resources for parents, to gather your friends & family close, and enjoy all the moments with your child you will be given. Try not to linger too long in lost dreams because there are happy & joyful times to come and cherish.
We won’t go into all the medical details of Wyatt’s lissencephaly or his journey. His story is typical of many of the children you will read about on other sites. I hope though that you will be encouraged by our love and find some great resources to help you on your own journey. One of our nurses said to us early on---“this is a marathon, not a sprint.” We remembered those words often.
We have learned many lessons that we get to practice everyday thanks to Wyatt. Some we do gracefully, some with struggle. Wyatt was and is an amazing teacher—we miss him deeply each day.
Where there is great love there are always Miracles---Willa Cather
~ Jenell & Shannon moms to Angel Wyatt
Special Thanks to our wonderful hospital team that helped us with meals, coffee, errands, reading & knitting material, and most of all friendship: Peter, Carrie, Connie, Jeff, Rose, Kelly, Teresa, Jan & Kerry and Sue. You each made a huge difference! Thanks to Julie, Dave, and Al for taking care of the house when we were gone.
We are grateful to our friend Frank of PALMATEC
Solutions for hosting Wyatt’s web site.
And deep appreciation for the special song written for Wyatt from Songs of Love Foundation. They created an amazing little song for Wyatt! (Wyatt, Wyatt we love Wyatt…)
Special thank you to Children’s Hospital in Seattle and specifically the neurology department.
Jenell & Shannon & Wyatt
(12/22/01)
Please feel free to email us with any questions
or comments. We would love to hear from other parents. If you have any links
you would like to share please do.
dematteo@olypen.com
Lessons
we
have
learned
from
our
son:
1.
Let go, if
necessary you can let go of more than you ever thought you could.
2.
Each day is a
new and different day.
3.
There are
always gifts being offered. Count your blessings daily.
4.
Everyone
deals with things differently.
There
is
no
"one"
way
to
cope.
7.
There is
unconditional love,
just
look into your child’s eyes.
8.
Pray.
9.
Accept what
is. Live in Now.
10.
Take good
care of yourself so you can take care of others.
11.
Laugh
as
often
as
you
get
the
chance!
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