What is Lissencephaly? 

Wyatt's Lissencephaly has resulted in global delays, seizures, g-tube & nissen, and respiratory issues.

The following Links have specific information concerning the rare brain disorder called Lissencephaly.  Click on these to find out more detailed medical information and resources.

The Lissencephaly Network is an organization based out of Indiana.  They sponsor a BI-annual conference on lissencephaly in the United States.  www.lissencephaly.org/

The Lissencephaly Launchpad has numerous resources and web sites of children.  They also have a book list and resources from around the world homepage.ntlworld.com/foliot/liss/

Lissencephaly Chat group on Yahoo Groups.  This is a tremendous resource for parents to talk about what’s going on with their child and to offer help & suggestions & real life experience.  Monitored by parents for parents.

"I think I can see through this fragile body, his tenacious beating heart, red and courageous, like a monarch butterfly beating its wings against the hurricane, without a trace of fear, with the only arms of his free spirit, because there is not such thing as defeat in this game called life, there is only fight and the enjoyment of the moment seized, the golden apples took one by one from heaven. This is my little rascal stealing treasured minutes to eternity, teasing the power of destiny, with the sole strong desire of life, taking his cards as they were dealt to him, without a grimace of complain. When I see him, when I hear his laughter I could ask myself, is there a superior power in universe? Is there God of justice and mercy?  I don't know for sure, but certainly there are angels, at least, elevated, pure lighten souls, because one visited my home once and decided to stay a while with us.

Sometimes somebody ask me if I have the right to laugh, I tell you, we should make a never-ending celebration for the chance of being in this world one day more.”